The survey is about what it is like to give this support to someone experiencing altered states of mind, what we often call “psychosis”.
The survey which forms the first part of a study about what it is like to give this support to someone and is now live here, and is open until the end of April 2021
“Safely Held Spaces help people experiencing mental and emotional distress, and those who support them, to make informed and empowered choices about the kinds of support they want, by exploring various ways of understanding mental and emotional distress, and by helping to influence the types of support and information that are available.”Safely Held Spaces
They are looking to gather up to 100 survey responses from holders/carers/friends and family of people experiencing mental and emotional distress and the altered states of mind we often refer to as psychosis.
If you’re a holder yourself and then circulate the survey link to those in your network who are in contact with carers/friends and families? They are keen to reach friends and family who are new to services, or perhaps not in contact with services, as well as those who have been connected to services for longer periods of time.
This survey is part of a research study about friends and family who support someone experiencing altered states of mind, what we often call psychosis. The study is about what it is like to give this support to someone. If you are a friend or family member of someone who experiences altered states of mind and the person you support is based in the UK, then you can take part in this study.
“Even though we know that the support of friends and family is really important to the person experiencing altered states of mind, we don’t know very much about what it is like to give that support. We also don’t know how the experience of giving support changes over time, especially when support is given over many years. This study aims to help fill these gaps.”
The study has two stages.
This survey is the first stage where they will find out what is most important to you and about the experiences that people who support others may have in common.
In the second stage they will explore the experience of giving support to another person through in depth-interviews with a smaller number of people. At the end of the survey, you will be asked if you would like to take part in a depth-interview for the second stage.
The findings from this study will be submitted for publication in a peer reviewed journal and presented at meetings and conferences. We will also share the findings with influencers, mental health services and other organisations supporting family and friends.